S.O.S.!

Greetings all!
This past week has been rough in the Guadagnolo home! Last Tuesday was the beginning of our family melt down. Juleyana had a grand mal (the jerking type) seizure that afternoon. Just when we thought we we were doing so good and seizure free for 11 months.... BOOM! The bomb went off.

It turns out that she had a sudden spike in temperature, an ear infection and caught the horrid stomach bug that has been plaguing around us. We were taken care of in the ER with some fluids, antibiotics and a dose of anti seizure medication.
Watching your child in a seizure state is horrible.  I was so upset because we had almost made it a year with no episodes. However,  learning the cause of this seizure gave us a little peace of mind as it was not related to her condition. It still doesn't take away the pain and heartache is causes to all of our family.

Our oldest daughter also caught the bug and began vomiting while we were in the ER (Fortunately for us, she was home). This was just an hour before her playoff soccer match. She was so upset she couldn't be there to help her team. Lo and behold, our son also caught it that night. Sigh!

Jaylene bounced back fairly quickly, but Juleyana took a hit and wouldn't eat or drink very much for the next couple of days. We did everything we could to keep her hydrated, and it worked. We had a couple of visits to urgent care, one Friday to make sure she wasn't dehydrated and one on Mother's day because she started vomiting on Saturday night. Oh, did I mention that on Friday night I caught the stomach bug and was out for 3 days (I did my best to still care for my babies)?!

Mother's Day, my wonderful husband cleaned the house and we sprayed lysol everywhere Monday morning to kill all the germs! I think we kicked it to the curb because (thankfully) everyone is back to normal!
On a better note, we had our follow up appointment with our metabolic geneticists, Dr. Vats.
We received results of the studies that were sent to the Mayo clinic. Those returned to be normal! Juleyana was such a happy and playful little girl at her appointment. Dr. Vats loved her and was pleased with her progress. We will continue our everyday schedule and hope to have her MRI in August! We will also have a follow up with her neurologist next month.
Today, Dylan graduates from preschool! He has really grown a lot this school year and we are excited to see what Kindergarten will bring! I'm just excited to have our two oldest at the same school! Life will be easier now, not by much, but easier! I'm also happy about this because it will give me more one on one time with my Jules! Should be a special year! :)


Bee Buzz
Weight 20.21lb (lost a tad with being sick)
Head 42cm
Length 34in
Loves clapping and to sign "more" and is starting to sign "all done."
She is using her gait trainer to help with walking independently.
She babbling more
Loves to hop on her knees!
Continues to loves her "cados" (avocados)
Loves to kiss and sometimes waives "hi!"
She is determined more than ever!