Monday, August 7, 2017

Oh My Summer!!!

Greetings!
Here we are,  halfway through 2017! We have had a very, very busy couple of months. So busy that I don't even know where to start!

In June, we took a family vacation to Mammoth Mountain. We camped in a trailer, with no hookups for a whole week! What an amazing experience, to leave the craziness and have peace, relaxation and of course, fun! The kids loved being outdoors fishing, seeing wild animals and getting dirty! 
Well, all good things mustcome to an end! We received a call mid-way through our vacation. Our house had 3.5 inches of water throughout the entire place!!! We debated returning early to deal with the mess, but we decided to make some phone calls and with the help of family, we were able to stay and try to enjoy the rest of our trip.

 We returned home to a complete disaster. All of our belongings were scattered, boxed and sent away to be restored from water damage. Our walls were ripped apart and 100 fans were buzzing in our house.  We are currently living with family because our home is completely gutted. On the flip side, we get to remodel our house that is less than 10 years old. They hope to have it completed by the end of October. Keeping our fingers crossed!
With all the madness going on, our baby girl has been doing some amazing things! Juleyana turned two on June 23rd and has been enjoying every second of being a big girl! She is babbling more, and has begun to walk by pushing her shopping cart that she got for her birthday. She is squatting while holding on with one hand and continues to crawl long distances at rapid pace! She loves to stand and walk with her brother and sister too! She continues to be the light of our lives and amazes us everyday. :) 

 Our two older children started school July 11th. We now have a first grader and kindergartener! Its been tough as we are living 20 minutes away from school. If you didn't know, we walk to school from our home!  We continue Juleyana's busy therapy schedule as well. We are one busy family! This summer has been full of fun, crazy and no sleep for momma or daddy!


Lastly, we had a follow up with Dr. Yu, Juleyana's neurologist.  He is thrilled with her progress! We will be scheduling a follow up MRI and MRS for her within the year. Also, on the agenda is to do a spinal tap to see how much protein she is actually converting from asparagine to glutamate, in hopes to guide us for the future. We are praying for positive results!


Bee Buzz
Weight 21.5lbs
Height 2'9"
Head 43.2cm
Loves her baths
Walking with shopping  cart or in her gait trainer

Babbles back and forth in conversation
Drinks from her sippy cup with a straw
Says "Momma" & "Dada" among a couple other words.
Loves her avocados and cottage cheese!






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