Neurology

Let me start by saying our neurology Dr has been great. Dr. Yu has been following her since January 2016. Our concerns were the seizures, but also our baby girl was behind in meeting her milestones, and was not a happy baby. She had very poor head control. She will still occasionally drop her head when she is tired or working hard during therapy. Her first electro encephalo cardiogram (EEG) in January was normal. So he further ordered a 72 hour EEG. For that, we traveled to Hollywood and back. We had to endure a long 72 hr at home with our baby girl's head wrapped up and wires hanging out the back with a backpack attached. We were also to have video recording, but that didn't pan out. The results of the 72hr EEG were....you guessed it NORMAL. No episodes during the 3 days. However, the week before she had an episode, and the week after the test she had one.
Juleyana's seizure activity is like no other. I describe it as a blank stare into space with drooling and occasional posturing without any responding to painful stimulus or verbal commands. She then would go into a twitching/jerking motion on her left side of her body. They last 5 to 10 minutes. After the seizure, she would sometimes vomit, and then be sleepy from 30min to 1 hr. This is normal post seizure activity. 

We do have video as this is the only way for doctors to see what was happening. Each of the occurrence had a 911 call and a ER visit with erratic overwhelmed mom, and dad. With each one we became, I hate to say it, more comfortable and less chaotic with the 911 call. The worst part is seeing our baby so vulnerable and us being so helpless. Her last one was June 9th 2016. At this time we decided we couldn't see our baby like this, and started her on anti seizure meds during our last ER trip. 

She was started on Keppra and that has worked wonders for her. To date June 9th has been her last seizure. We decided we would like an MRI...it wouldn't change anything, but possibly give us reasons why Juleyana was having these episodes and her motor delay. We already had her in physical therapy and occupational therapy each 1 time a week for 1 hr. This last picture is her riding in the car to have the EEG equipment removed. Thank God!